Saturday, February 27, 2010

Ups and Downs and in between

So this week has had ups and downs.  William is up and moving.  He is bouncing back and settling into his new cast.  He was happy and laughing again which is something we worry about for the first week of each cast.  These are all ups.  There are down sides to Progressive Infantile Scoliosis as well.  I have been smacked in the face this week with the fact that although I have tried to be super mom, I am failing Cody so much.  He has been craving attention from me.  He has spent the week sleeping on our love seat in our bedroom because he is "sick".  It took my sister, his teacher, to point this out to me.  William requires constant care and although I have tried to give as much attention to my precious Cody Man, it has fallen short.  I wonder how other parents deal with this.  I think sometimes you try to be all things to all people and with that you worry about others seeing your faults.  I am not super mom, super wife or super friend.  I am flawed and failing in so many aspects of this. 
       Another little battle that has shown it's ugly head this week is my battle with Midwest Radiological Imaging.  When we were seeking evaluation from specialists we got copies of Wills xrays from Midwest, our local radiolgy group.  We viewed his films for the first time before our trip to Indianapolis.  I kept saying oh my goodness look at the crazy curve in his spine. Then I looked at the date on the film....the crazy curve in his spine was from June of 2009.  This was 4.5 months prior to his xray that was read as scoliosis.  His October x-ray with the same group was taken stretched out on the table and read as 28 degrees.  A week later in Chicago he had an x-ray taken sitting upright and it was read as 67 degrees. We asked our surgeon why the difference and were told the correct method for diagnosing scoliosis is standing or sitting.  When you lie flat it is not natural and skews the results.  Ok so now we have the answer to why the October x-ray was wrong, but it still doesn't explain why his June x-ray with a very obvious defect was read as "no obvious abnormality".  This delayed his treatment and could possibly lead him to Vepter Rods before he is 4.  Ok so now I need to get to the point and off my rant...when William had his MRI prior to casting, we had to have his scan completed in Evansville.  We were instructed to fedex his scan to Chicago Shriners as soon as we finished.  They read the results there and casted William for the first time 3 days later.  We told the hospital what we were doing and requested his films not be read.  We have paid the hospital the insane amount of money they charged for his MRI on all 12 inches of his spine, then we received a bill for the read of that MRI.  I paid for 2 incorrect reads already and I am standing my ground on not paying for this one.  I am not sueing for malpractive although they claim non was committed. They have put it through one review and friday I insisted it go back for a second review.  There is principle involved in all this. 
        Ok to sum up this week, William is great(minus fever and vomitting from 15 month shots) oh yeah didn't mention any of that, Cody is pretending to be sick because I have been a poor mother, and although we have paid several thousand dollars to the hospital for an MRI I am refusing to pay a few hundred for the read.  It's a crazy life, but someone has to live it!  Hoping next week I am back to my chipper self. lol

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