Miss Kiya got cast #2 yesterday after a very long 2 month break. If you recall we had to cut her cast off early at the end of November due to a nasty, infected sore on her back. Cast date for mid December was cancelled. Cast date got rescheduled for mid January and Kiya got sick so we had to cancel. Well, yesterday was the day.
We were very fortunate and blessed to spend the day with William and Giana. It makes such a difference to have you friends their with you. They get it. We can support each other. It was truly amazing to see both little kiddos and their amazing families.
It was a long day for sure. There were 4 casts that day and Kiya was casted 3rd. We left Shriner's at just after 2pm after having been there since 6am. Kiya was a trooper. She was silly at times, feisty at other and sometimes just plain mad. That said she did say Thank you to Gwen, Robert and Maxine. She yelled and screamed at all three of them at some point in the day but by days end she was being really polite.
After the long break, I was mostly prepared to hear not so good numbers. I wasn't quite prepared to hear just how bad. I was hoping she would have held some sort of correction but in fact she measured 60 + degrees out of cast. In September at her first cast she measured 52. Not great. But Dr. H worked his magic and pushed and pulled and Miss Kiya is currently being held at 15 degrees in her snazzy pink cast. This man is a true gift. He was very encouraging and still feels we can get complete correction with Kiya if we stay the course. So we are here for the long haul.
We know we have a long road ahead of us and I am so grateful that I don't have to walk this path alone. I hate that we have to walk the path yet I have made these amazing friends so that is a big bonus.
We are settling in to our new normal. Kiya is such a trooper and has bounced back rather quickly. She is walking around, bending to pick things up, crawling some, rolling over, and sitting up for short periods of time. She climbed a few stairs and has tried to get back up to a stand after lying on the floor, couldn't quite get it yet but she will. She even slept on her side last night for a little while. And today she sat on her tricycle. She doesn't quite reach the pedals but she wanted up there and moved it with her feet. It was great.
I am anxious to see what Kiya does next. Last cast she learned to walk. Will it be full fledged running? Will it be jumping? Both? Something else? We shall see.
For now we are just going to enjoy the pink cast and the lack of worry. For the next 12 weeks my baby girl's back isn't going to get worse. That is a huge relief. Don't get me wrong I loved the break and all the squishy hugs but for 2 months I worried, I watched and deep down I knew her back was pretty crooked. 12 weeks with no worry sounds pretty fabulous.